Hello. My name is Ekaterina. I am divorced and am raising a disabled child alone. My daughter's name is Evangeline. Evangeline was born on June 22, 2013, on time. She had a breech presentation. The birth was difficult. She was born naturally without a CS, as a result of which Eva had hypoxia and a displacement of the cervical vertebrae. Then there were several massage courses and treatment by osteopaths, homeopaths, various examinations ... But developmental delays continued to bother us. At 1.5 years old, we learned the diagnosis - a genetic disorder, Angelman's syndrome. This happens in 1 out of 20,000 cases. It shocked us greatly. Nobody knew how to live with it now. All doctors did not know about such a diagnosis.And when they found out what it was, they said that nothing can be done with genetics. We continued to look for different ways of rehabilitation. We were engaged in Vojta therapy, bobath therapy, hydrorehabilitation, we took a lot of massage courses. I studied the BFM technique, studied with Eva at home. treated with homeopathy. Now Eva is 9 years old, she does not walk well and does not speak. Sometimes we turn to charitable foundations and they help us pay for rehabilitation classes. There, Evangelina learns how to walk correctly and how to communicate alternatively. Eva is also involved in hydro-rehabilitation. Children with this syndrome are very fond of water and always feel comfortable in it. We would be happy to go to the sea. Since we cannot organize such a trip to the sea by ourselves (there is no financial possibility), we ask for your help. Evangelina will be very happy to visit the sea!
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