Our new friend Mark from Krasnodar @m_ugrekhelidze
Mark is only 2 years and 11 months old. He, like Styopa Zaplatkin from Kirovo-Chepetsk, has SMA - spinal muscular atrophy.
Just look at those eyes the color of the sky
It only takes one injection of the American drug Zolgensma to save Mark.
The cost of the injection is more than 2 million dollars. This is the most expensive drug in the world. The amount is huge, but on the example of @stepa_sma whose collection was closed recently, we all know that miracles happen
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Mark was born on 02/09/2018 without pathologies and absolutely healthy.
Developed according to age, began to hold his head in time, began to crawl and sit. By nine months, when there was no support on the legs, the parents began to worry and began to go to the doctors.
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In April 2020, at the Research Institute of Pediatrics. Yu. Veltishcheva passed a genetic analysis, which showed that Mark has type 2 SMA.
It is advisable to give an injection until the weight of the child exceeds 13.5 kg. Mark now weighs 12,800 kg.⠀
To collect funds (to pay for only an injection), the clinic in Los Angeles gave time until 06/30/2021.⠀
Parents have opened an independent collection through social networks @m_ugrekhelidze
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They need any Help, reposts, so that as many people as possible know about them, a money transfer. All details in Mark's profile
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We believe in you friends!