Hello, my name is Elena!
I am a mum of three special sunny kids: Lyubochka, Ralinochka and Karinochka. We are Tatars and live in the Republic of Tatarstan.
I want to share with you our life story and I hope that you will not remain unaffected to the fate of my three glorious daughters and will help us to realise our dream!
My eldest daughter's name is Lyuba, she is 17 years old. She does not walk or sit independently, she has no speech, she eats with help, she has no chewing reflex, she is in nappies. Diagnoses:
Primary: Progressive occlusive hydrocephalus. Associated: Epilepsy symptomatic focal, resistant course. Central tetraparesis, advantage on the right. Delayed psychomotor and speech development.
In 2006, Lyuba was born in the Zelenodolsk maternity hospital. My husband and I gave our daughter this name because she was born, as it seemed to me at the time, from great love. Our girl grew and developed according to her age. A year later Lyubochka had a fever, the girl began to shake and I called an ambulance. My daughter spent a month and a half in intensive care in a coma. The doctor told us, in no uncertain terms: “Either the child will die, or survive, but she will have some disability”. But God gave Lyubochka a second life.
The second life was not easy for us... When Lyuba was released from intensive care, she turned into a completely different child. She did not know how to look after herself, she stopped talking, her eyes were not meaningful. Luba's dad couldn't accept that his child had become “like that’” And in the end he left us. But my parents supported me. I slowly began to teach Lyuba all the simplest things. It's impossible to tell you how hard it was for us. But I never gave up hope. After all, a mother is the only person on Earth for whom nothing is impossible!
Luba had to have a second brain surgery urgently in February 2018. The doctors found hydrocephalus. To prevent it from spreading further, we had an emergency operation and a shunt was installed, which needs to be checked every 3 months according to the results of MRI analysis of the head.
Two more beautiful girls appeared in our family 5 years ago. Twins Ralina and Karina..... Fate has decided so that the girls were born prematurely, at 31 weeks with a weight of 1600 kg. They survived the reanimation, one of the girls was on ivl, which affected their early appearance in this world and lag in physical development. At 11 months my little girls were diagnosed with cerebral palsy. But I did not give up on my long awaited and God-given princesses. Since 11 months my life with twins turned into constant rehabilitation courses and treatment. And until now for 5 years we have been struggling with our diagnosis of cerebral palsy.
We do not stop at what we have achieved, but continue to work hard. I am trying to do everything I can to put Lyuba's sisters back on their feet. So that the girls could go to the first grade healthy and strong. That is why we continue constant paid and free rehabilitation courses in the form of massage, lfk and many others. I naturally can not work, alimony, pension and care - it is enough only for household services. And for the treatment of children in paid rehabilitation centres the funds are no longer enough.
My kids are my everything. But sometimes my hands are down and I don't even want to live, because it can be difficult and hard to cope with three sunny children. But the thought that it is my duty, it is my God-given children, saying that I just have to make their life happy, bright, carefree, easy, beautiful give me confidence and give me strength.
And I approached your foundation with the purpose to delight my girls, to show them a part of this world. To show how beautiful and wonderful it is. That there are many things in it, and not only constant rehabilitation courses and hospital walls.
With respect,
Elena
*The donation fee for the family of 4 includes:
Visa processing
Airline tickets to Cyprus
Transfer Larnaca - Paphos
Programme for 14 days
Petrol expenses
Meals
Excursions
Entertainment
