Hello, my name is Jolanta and I am mum to a special little girl called Marta.
Marta has Rett syndrome, she doesn't walk, doesn't speak and is under full care, this year she will be 9 years old on the 15th of June and all these years we haven't gone on holiday anywhere, because all my financial resources, time and effort had to be invested in adapting the environment so that in the future I could take the best care of her without hurting my back.
At this point I had achieved my goal and could breathe, this was very important to me because I was the only one caring for my daughter. Marta's father died when she was 1 year old. My husband had cancer that he did not beat and Marta and I were left alone.
If I have to tell you about Marta, I can tell you that she is a very sweet, smiling and very strong girl. A year ago Marta came down with the flu and ended up in hospital. The situation was very serious - Marta slept in intensive care, in an artificial coma, because she could not breathe on her own. I take care of Marta every day - I wash her, feed her, take her for walks, we do sports and play and go to classes. We have a hot tub at home, Marta loves to swim. Of course, like all children, Marta loves cartoons:)
In 2024 we spent a total of two months in hospital and the rest of the year at home on an oxygen machine. At the moment Marta's condition is stable and since December Marta has been breathing, eating and smiling on her own. I am very happy about that! And I will be very happy to be able to come to Cyprus and live by the sea. I would like to have a rest in the sun. A change of environment is always a positive experience. A sea and fresh air will be 100% good for Marta's lungs.
Wishing to give joy to other families, three years ago I came up with a charity project to create bird feeders "Am mājiņa”. The feeder is easy to assemble by hand, making it a fun activity for the whole family. The simple construction without tools allows children and adults to create a cosy place for birds together. All funds raised from this project help me to cover little Marta's daily living needs.
Rett syndrome is a rare genetic disorder. The genetic mutation that causes the disorder occurs randomly, in 95% of cases in the MECP2 gene. Only in some cases, the genetic disorder is inherited. However, the exact cause of this syndrome is unknown and is still under investigation.
You can find out more about us:
IG: https://www.instagram.com/ammajina/
Tik tok: https://www.tiktok.com/@ammajina
Web: https://www.ammajina.lv/par-mums/
*The donation fee includes:
Programme for 10 days
Petrol expenses
Meals
Excursions
Entertainment
Airline tickets to Cyprus are sponsored by our partner charity foundation "BeOpen"